EmpathyWorks Has Had 10,000 Views!

On July 11, 2009, I wrote My First Post on EmpathyWorks (click on text to view).

In the 57 posts that have followed, I have shared links and comments about articles, books and research studies on empathy and related aspects of relationship building. Many of my EmpathyWorks posts were links to a column I wrote for MPNforum, an online magazine for people who, like myself, are self-managing, or helping a loved one manage a myeloproliferative neoplasm.

I have enjoyed writing and sharing these tidbits and hope they have provided readers with opportunities to become more aware of the ways in which empathy can be a tool for enhancing understanding and promoting compassion and caring, particularly in health care settings.

I look forward to continuing to continuing to write and reflect on the impact and value of empathy here.

It would be great to have more comments and dialogue with readers, so please feel free to share your thoughts or ideas, either in the comment section on the blog, or via e-mail at goldsteinm52@gmail.com.

Enjoy!

Michael

The Empowered Patient - Shared Decision Making: Should I Have a Stem Cell Transplant?

In my The Empowered Patient column in the January 15th issue of  MPNforum, I provide some thoughts about the difficult decision that people with myelofibrosis face regarding having a hematopoietic stem cell transplant. See: The Empowered Patient - Stem Cell Transplant

The Great American Smokeout - An Empathic Opportunity

Though any time is a good time to quit smoking,  November 15, 2012 is the 37th annual Great American Smokeout, or GASO, a day when hundreds of thousands of smokers will try to stay cigarette free.

Tobacco use remains the single largest preventable cause of death and disease in the United States, with approximately 443,000 U.S. adults dying from smoking-related illnesses each year!

 

The good news is that stopping smoking will provide some immediate health benefits. For example, your risk for having a stroke, heart attack or other cardiovascular event are reduced dramatically as soon as you quit smoking. Moreover, the risks of developing a smoking-associated cancer or other tobacco use-related condition also diminish over time.

 

Even if you don't smoke, someone you love may be a smoker and might benefit from quitting smoking during the GASO, or as a New Year's resolution, or any time!

 

So, what does this have to do with empathy and why am I writing about the Great American Smokeout here? 

 

Well, I can't help myself. As a physician, I have seen the ravaging effects that smoking has had on my patients and those who love them. As an educator, I have spent a good part of my career trying to help caring clinicians feel more prepared and confident about assisting their patients who smoke. And as a researcher,  I know that even a small dose of clinician empathy and a little advice and support improves smoking cessation outcomes.

 

So, if you are a smoker, take this opportunity to think about quitting. If you love a smoker, tell them you care about them and want to support them in their efforts to stay healthy. If you are a clinician, ask your patients who smoke if you can help them address their smoking.

 

The good news is that many forms of effective smoking cessation treatment, including medication, counseling and support, are now readily available:

• Medications reduce symptoms of nicotine withdrawal and improve rates of quitting. Some nicotine replacement therapies (e.g., patch, gum, lozenge) are available over-the-counter while others (i.e., nicotine inhaler and spray; bupropion; varenicline) are available by prescription;
• Behavioral counseling, alone or when provided with medication, improves quit rates. Counseling is provided in individual and group formats and also via free state-supported telephone quit lines; and
• Online quit programs and mobile aps also show great promise.

For quitting resources and more on the Great American Smokeout, go to the American Cancer Society page at: http://www.cancer.org/healthy/stayawayfromtobacco/greatamericansmokeout/index

For a wonderful Youtube video by Dr. Mike Evans on how to quit smoking see: http://www.youtube.com/watch?v=I0zvG2vSjrA&feature=share&list=PL9FF73EC555CB6855

And for addition quitting resources see the National Cancer Institute site at: http://www.cancer.gov/cancertopics/tobacco/smoking

Top 10 Ways to Be More Empowered: New Post in MPNForum, April, 2012

My latest column in the April, 2012 issue of MPN Forum lists my top 10 strategies for empowerment. As I approach 60, I plan to employ these strategies to help me to stay well and manage my health conditions. I hope you will find them useful as well.

See Top 10 Ways to Be More Empowered

An Oncologist's Experience with his Spouse's Cancer

It has been a while since I posted. I was inspired to place an entry here after reading the last in a series of New York Times blog posts by Peter Bach, an oncologist at Memorial Sloan-Kettering Cancer Center about his and his wife's experience with her cancer diagnosis and treatment. I highly recommend this series, as well as the comments posed by readers. See below for the comment I posted to the NYT blog:

"Thanks to Dr. B, and his wife, for being so willing to share their experience with us, in such a public way. Dr. Bach's openness and honesty, his efforts to be reflective and mindful, and his capacity to use his insights and learning to improve his caring for patients, is both instructive and inspiring.

As a medical educator, I have encouraged students to learn from the experiences of patients and their caregivers. They are our most valuable teachers. Hearing first hand about the emotional, physical, interpersonal and spiritual challenges of having an illness helps us to learn what patients and their loved-ones need. Learning about their experience also provides opportunities to respond with empathy and compassion, as well as with treatments, resources and services that might be available to help tthem to manage and cope. If we don't have the skills or capacity to respond ourselves, we can refer patients and their caregivers to colleagues or to valuable services and programs in the community, including those provided by other patients and peers. Yet, as many others have commented, too many clinicians feel unprepared to both uncover these needs, or respond effectively. This must change. Hopefully, Dr. B and other enlightened faculty will continue to help future students to develop competencies in clinician-patient communication, compassionate care, patient activation and self-management support.

As Dr. B has demonstrated, we can also learn valuable lessons from those clinicians who are willing to share their personal experiences with us, however painful. Thanks again for sharing his story and providing an opportunity to learn from all those commenting here. I join others wishing Dr. B. and his wife well. I also want to second the recommendation made by another reader about Rachel Remen's books, Kitchen Table Wisdom, and My Grandfather's Blessings. Rachel is a physician who epitomizes the skills associated with compassionate relationship-centered healing. She is also a fabulous writer and storyteller."

Michael

Another MPD support list

To correct an oversight, I have added a link to the archives of another fabulous myeloprofliferative disorders (MPD) online support listserve, the MPD-NET list, which is supported by ACOR, the Association of Cancer Online Resources. This list has been another wonderful source of information, advice and support for me.

The link to the list archives and information about joining the list is: http://listserv.acor.org/archives/mpd-net.html

Michael

My post to the MPD Support Listserve

Below, I have copied and pasted a post I made to a myeloproliferative disorders (MPD) support listserve.

In 2005, I was diagnosed with polycythemia vera, a member of the MPD family of disorders. Like other chronic conditions, these disorders are associated with a variety of symptoms that effect quality of life and function. After my diagnosis, I found the list online and have been a regular reader and contributer since. The MPD Support list provides subscribers with an opportunity to ask questions, share knowledge and experience, learn about the latest research and clinical trials, and share support.

I, personally, have recieved invaluable information and suppoprt from other members of the MPD support list. I have also had an opportunity to offer my perspective as a physician-educator. Quite often, members of the list raise concerns or issues about their interactions with clinicians, especially their clinicians. In response to a post about a particularly problematic interaction witha doc, I shared the following post. Visit the listserve at http://listserv.aol.com/archives/mpd-support-l.html to gain insight into the benefits of such online support groups. See also the resources at the end of the post.

Here is my post from July, 2008:

Unfortunately, all too often, we feel unheard, or even worse, dismissed by physicians who don't understand or value the importance of OUR knowledge, expertise, experience regarding our illness. Docs are not only failing to hear, connect and respond to the needs of patients. As Axxxx pointed out, docs who fail to engage and enlist the patient in care miss, or fail to collect, key information that is essential to diagnosis and treatment planning. This problem not only leads to anger, dissatisfaction and other justifiable responses (such as Exxxx's), it also leads to poor clinical outcomes. As a patient, I have had my own share of problematic interactions with docs. On the other hand, I have had some good experiences as well. As a physician and teacher of other clinicians, my whole career has been dedicated to helping students and clinicians to appreciate the importance of using effective communication. We have a long way to go.... but I have not given up on trying.

So, Exxxx (and others)... we (clinicians)... need to hear you.... respect you... appreciate you.... and acknowledge your expertise... as well as respond to your needs. And we (clinicians) also need to take advantage of listserves like this one, as well as other ways in which patients can assist each other to address the problems and needs associated with having a chronic condition. Cxxxx's advice to bring a family member, or other companion, to health care visits is a wonderful idea. It helps to have another set of ears, and an advocate with us to increase the chances that we (patients) will be get needs met and questions addressed.

I have found a couple of wonderful organizations and programs that are striving to enhance patients' capacity to manage their health conditions, as well as their engagement in the process of improving care. See the websites for the Institute for Family Centered Care (www. familycenteredcare. org (http://www.familycenteredcare.org)) and New Health Partnerships (www.newhealthpartnerships.org (http://www.newhealthpartnerships.org)). I have had the pleasure of working closely with both of these organizations and can vouch for their value to patients, clinicians and health care systems. You will find lots of good resources. [Rxxxx.. there may be some ways that we can create links to these sites from our websites].I would love to have the opportunity to serve as a source of support of members of this list who would like help forging effective partnerships with their health care providers. However, the best advice will come not from me, but from other members of this community who can share the strategies that have worked for them. Feel free however to write to me on the list as well as offline (goldsteinm@aol.com)

Michael PV since 1/2006, asa, phlebotomy