In my latest column in the October issue of MPN (Myeloproliferative Neoplasms) Forum, I share ways in which I have used a Personal Health Record (PHR) to track information about my condition. Using the tools available in PHRs, I can create graphs that show the relationship between treatments and key lab values. Sharing these graphs with my physicians not only helps us to make better decisions about my treatment, it also saves time and allows us to focus on what's important to me, including my feelings and concerns about my condition. My doctors have been very receptive to my use of these tools, and I have benefitted from the increased time they havefor empathy!
See link to the column in MPN Forum below:
http://mpnforum.com/a-oct-michael/
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ReplyDeleteYou can read about how a person with a MPN persuaded her insurance company to provide coverage for interferon treatment by using a chart she created to document her positive response to treatment. See her article in the latest issue of UPDATE, the MPN Research Foundation's newsletter at:
ReplyDeletehttp://www.mpnresearchfoundation.org/Pegasys-appeal-3A-one-patient-27s-story